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Sickle Cell Support Group

Locations
Available across the UK
Scotland
Northern Ireland
Wales
England - North East
England - North West
England - Yorkshire & Humber
England - West Midlands
England - East Midlands
England - South West
England - South East
England - East
England - Greater London
Available internationally
Czech Republic
Bhutan
France
Honduras
India
Japan
Nicaragua
Guatemala
Uganda
South Africa
Sri Lanka
Rwanda
Portugal
Netherlands
Hungary
China
Australia
Canada
Egypt
Nepal
New Zealand
Nigeria
Tanzania
USA
Argentina
Malaysia
Mauritius
Mozambique
Myanmar
Philippines
Lebanon
Suriname
Guyana
Trinidad and Tobago
Sierra Leone
Singapore
Cote d'Ivoire
Eswatini
Germany
Ghana
Togo
Zambia
Zimbabwe
Ages
0 - 4
4 - 7
7 - 11
11 -16
16 - 18
18 - 21
21 -25
25 - 30
30 - 35
35+
Delivery
Online
In person
Online & in person
Access
Online
In person
Through a school or college
Through an organisation
Independently / Self-serve
Skills Icon: ListeningSkills Icon: SpeakingSkills Icon: Problem SolvingSkills Icon: CreativitySkills Icon: AdaptingSkills Icon: PlanningSkills Icon: LeadershipSkills Icon: Teamwork
Impact Level 2Impact Level 1Impact Level 3Impact Level 4

The 'Therapeutic play and psychosocial support' programme is targeted at children aged 6–16 living with sickle cell disease, alongside support for their caregivers. The programme is integrated into existing community support group meetings and has two parts. Children take part in guided therapeutic play sessions that help them express their emotions, build friendships, and develop core skills. At the same time, caregivers join sessions focused on managing stress, building resilience, and navigating healthcare.

The programme helps both children and caregivers learn how to handle challenges and find practical solutions to problems. Overall, it aims to improve emotional wellbeing, strengthen coping skills, and build caregivers’ confidence through a supportive, trauma-informed, and peer-based approach.

The Skills Builder essential skills icons for Problem Solving and Adapting are used consistently across all materials. Children build and link essential skills to real-life scenarios through structured games and therapeutic play activities, while caregivers develop the same skills through peer discussions and scenario-based exercises drawn directly from their caregiving experiences. Progress for both groups is built and tracked using the Skills Builder workbooks, self-reflection passports and daily skills diaries.

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